It is not an easy role. The Cluster Kopfschmerzen Verein Österreich (Austrian Cluster Headache Association) offers you guidance, exchange with people in the same situation and practical support – so you can be there for someone without losing yourself.
Relatives are not a supporting act. In the CKVÖ you are just as welcome as those affected themselves.
Cluster headache is one of the most intense forms of pain there is. If you understand why the person affected reacts the way they do during an attack, you can support them better – and protect yourself better too.
Relatives are welcome in the association’s moderated online group too. Share experiences, ask questions, learn from others – without geographical boundaries.
Relatives reach their limits too. Psychological counselling is available via clusterberatung.at – for those who need support while they themselves are supporting someone.
Our self-help meetings in Vienna are open to patients and relatives alike. Direct contact with people who know similar everyday situations.
No guide can cover every situation – but a few basic principles have proven themselves in practice.
You can become a member as a relative too. You strengthen the community, gain access to everything the association offers and help make cluster headache more visible in Austria.
Practical articles for people supporting someone with cluster headache – from the first steps to looking after yourself.
The essential basics for understanding what the person at your side is going through.
Read the article (in German)How to hold conversations so that those affected feel understood rather than smothered.
Read the article (in German)Why you must not forget yourself – and how to tell when your own reserves are running low.
Read the article (in German)Questions before joining? verein@clusterkopfschmerzen.at or directly via our contact page.