Self-Help
No longer alone
Comparatively few people have cluster headache – the chance of meeting someone in everyday life who knows what an attack feels like is small. In the association you meet people who know it from their own experience.
For Patients · CKVÖ
You live with
cluster headache.
The Cluster Kopfschmerzen Verein Österreich (Austrian Cluster Headache Association) is the first point of contact for affected individuals in the German-speaking world. Behind our initiatives are people who experience cluster headache first-hand or support affected relatives. In this way, we connect information, exchange and support – with real understanding for an everyday life that outsiders often find difficult to comprehend.
The association is not a medical emergency or crisis service.
Numbers · Prevalence
What you already know – in numbers
Cluster headache is one of the most intense forms of pain known to medicine. Only around 0.1 % of the population are affected – this low prevalence and the low awareness that comes with it make diagnosis and understanding harder. A strong community matters all the more.
0.1 %
of the population affected
15–180 min
untreated attack duration
3:1
men to women
avg. 7 yrs
until the correct diagnosis
Membership · What you get
What the association offers you
Membership means more than an annual fee. You become part of a community that actively works towards improvements for patients in Austria.
Awareness
Being heard
The association campaigns publicly for better awareness and faster diagnoses. As a member, you are part of this voice – towards doctors, the media and policymakers.
Doctors' Register
Finding medical points of contact
Our doctors' register helps you find neurology contacts with cluster headache experience in Austria. It is currently being expanded nationwide.
Online Group
Digital exchange
In our moderated online group you can connect with other patients across Austria at any time – without geographical boundaries.
External Service · Psychosocial Counselling
Professional counselling outside the association
External paid service provided by Stefan Kohlweg, MSc., chair of the Cluster Headache Association Austria and independent psychosocial counsellor. Not an association service, not medical treatment, not psychotherapy, and not a crisis service.
External paid service
Go to clusterberatung.atMembership
Become a member now
The membership application takes only a few minutes to complete. The annual fee goes directly into awareness work, self-help services and the running of the association.
Further Reading · Blog
Helpful articles for patients
Articles that make typical themes of everyday life with cluster headache tangible – from the psychological burden to coping with acute crises.
- Mental Health
Cluster headache and mental health
Why chronic pain clusters put such a strain on mental health – and what has a stabilising effect.
Read the article (in German) - Self-Care
Self-care & stress management
Practical routines for easing the strain between attacks.
Read the article (in German) - Crisis Moment
When the pain takes over
An honest piece about the feeling of reaching your psychological limit – and what helps then.
Read the article (in German)
Questions before joining? verein@clusterkopfschmerzen.at or reach us directly via our contact page.